When the differences start to show

Max is now the grand age of 2.5 and firmly a toddler. No doubt about it, with his own views on what he likes/ dislikes and the ability to reck a living room in 30 seconds.

He is also a toddler with a disability, that as the older he gets, the more it becomes evident of where his challenges lie. This has no more evident than during June which has been jammed back with meetings and appointments for Max.

Firstly the 6 month paediatrician review where his general health is checked. Great news no major issues and a good reminder of how far he has come (born on the 0.2 line and now just under the 25th thanks to his new love of food!)

Next an appointment to commence his 2 week trial of an Bada Hearing band to help him with his moderate hearing loss thanks to glue ear,something people with DS are prone to thanks to their small inner tubes.

Lastly his 6 month TAC meeting (Team around the child) where all the professionals that work with him get together to review Max’s progress over the last 6 months and look ahead to review new emerging themes. Although the meeting itself is positive, just by having it highlights the gaps in Max’s development to his peers, something we are all programmed as humans to be obsessed about.

But what June has also highlighted is quite how loved Max is. From his community paediatrician who comments how cheeky and cute Max is when he is climbing onto her chair (something he’s apparently not suppose to do until he’s walking fully independently, but clearly Max hasn’t read the script) To the Health Visitor who has never met Max (that’s a while other story) but observes how warmly everyone speaks about him and she can’t wait to meet him.

But most importantly is the acceptance among his peers. Who include him in their games, chant his name if he’s come in late to nursery from an appointment and fight over who sits next to him at food time, even though Max has developed an tendency to steal food from their plates (did I say he has a new love of food!)

So although development charts have their roles, what’s most important is that Max is a well loved boy who is finding his own path.

Celebrating milestones

When you have a child classed as having a development delay, you often find yourself celebrating the oddest of milestones and this has certainly been the case with Max .

Yesterday I celebrated Max having this first Happy Meal to himself! An odd celebration you may think and certainly not something we celebrated with Max’s big sister, but it signifies a journey we have been on with him.

It signifies a long weaning process with Max, as we have tried to introduce him to new food textures and consistencies. A journey that has been made longer than we would have expected by the various colds/ chest infections etc that have all meant Max hasn’t been keen on moving on from the comfort of the food he has been used to.

Upto recently we have had Max friendly food with us at all times as we couldn’t be sure that he would eat the food when we are out and about. We’ve also had support from Speech and Language for 6 months as they monitored what he was happy/ not happy to eat. The conclusion from the experts and us a like, was, he would move to the next stage when he was ready.

So this Happy Meal shows how much he has come on and although we still need to have a back up with us just in case, we can normally find something for Max to have off the menu. Although he still thinks fish fingers are the work of the devil, so plenty of food still to conquer! 🤦‍♀️